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Tuesday, March 12, 2024

Dealing With Stage Four Neuroendocrine Cancer and Advanced Fibrosis

 

Image: Wikipedia - Philippe de Champaigne's Vanitas (c. 1671) is reduced to three essentials: Life, Death, and Time

Dear Readers,

Since my last post here something really big has happened. As you already know, I was diagnosed with Stage 4 Neuroendocrine Cancer. You can learn more about Neuroendocrine Cancer here. So far, the cancer is in a lymph node between my lungs, my bones (but not the marrow), and most notably in my liver. As it turns out, I recently learned that I also have advanced fibrosis of the liver which is one step down from cirrhosis. The fibrosis, according to my oncologist, "can be as life-limiting as the cancer." In short, it's not good news at all.

Right now, I don't really know what my prognosis is. It is possible that I could live for two years or live a long life depending on the progress of the disease. I have been on chemo for 18 months and am taking a break from it now. The cancer has remained "stable." That is, neither growing nor shrinking. We are monitoring it with a CT scan every three months. Right now, the biggest concern is the fibrosis and I hope to get in to see a GI specialist soon. I understand that the wait for an appointment can be months long.

In the meantime, I ask for your prayers. I have committed, thanks to the suggestion of the Passionist Nuns, to pray the Surrender Novena. You can find it here. I am leaving everything in the hands of Jesus and I am offering all of my sufferings for the intentions of the Passionist Nuns.

So teach us to number our days
    that we may get a heart of wisdom. - Psalm 90:12


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